I don't have a diagnosis yet, it's taking a while. I do have symptoms that fit the most with psA (nail pitting, itchiness, hypersensitivity, joint pain, and ton of other classic autoimmune stuff) but it takes a while.
1 year ago
celly
>don't have a diagnosis yet
Literally HOW? I went to the dermatologist, he glanced at one of my patches and was like, "Yeah, that's Psoriasis." He took a skin biopsy anyway but mostly as a formality.
fair enough well i hope the relief is nice. i love my hair more than life itself i could never
Honestly god same
I was crying in the bath again due to having to shampoo with the itch being extreme and while shampooing i just had a meltdown lol
GONE
Have you tried those special shampoos like T-Sal? They didn't work for me but lots of people said it was effective for them.
1 year ago
Laodicea
I don't have patches!!! I have all the rest apparently it's common ish.
It's either that or another autoimmune stuff dunno which is the best to have lool
I have a special shampoo and I wish it worked better like
My skin is so sensitive I never untied my hair cuz the contact of hair against skin is painful
1 year ago
celly
>don't have patches
Oh, wild. Is it not obvious on your nails? I think psoriasis also manifests pretty obviously on nailbeds in many cases.
It might be possible that you just have arthritis too.
Sorry to hear that hair against skin sucks for you 🙁 I hope you get it properly diagnosed and treated soon.
1 year ago
Laodicea
It's obvious yeah but like I have my nails fully pitted but all doctors have barely given a look.
Only one has taken me seriously and has sent me to rheumatologist. Which I don't know when it will be but hopefully that'll be the end of it.
Thx for the support I'm kinda manic due to all of this rn I cut like super long hair to super short lol
1 year ago
celly
>all doctors have barely given a look
That's when you need to go full Karen on them. No kidding, I probably annoy my doctors a lot whenever I see them because I pepper them with questions about everything.
I hope the rheumatologist can shed some better light on your condition. Good luck!
1 year ago
Laodicea
I really struggle especially since my morale is so low since I got sick yknow
I mean I have asked for tests and stuff at first I thought MS (which it obviously wasn't when skin involvement became major) and I got an MRI it's just ugh been one year
I'm so glad and also sad I cut it.
1 year ago
Laodicea
Also thx! I'm trying to stay positive and I've been learning piano to keep my fingers active so I don't lose more function than I should...
Eh actually the itching isn't the worst part it's the joint pain leaving me handicapped BUT I'm so glad the itching will if not gone alleviated and the fact it will take me minutes to shampoo if I need to instead of recovering for hours afterwards omg
That looks really nice, I just ended up with a bob lol but I'm going to the salon to get it retouched like picrel
1 year ago
Laodicea
Oh yeah I know bobs and stuff don't really fit me I really only look good with past the shoulders or very short
I am surprised my panic crisis at 2am didn't lead to a hair catastrophe lol
why
I liked when I had my hair short years ago but mainly because of extremely itchy scalp probably due to psA it was driving me crazy
psoriasis? damn im sorry
Wait I have psoriasis too. Are you on any biologics?
I don't have a diagnosis yet, it's taking a while. I do have symptoms that fit the most with psA (nail pitting, itchiness, hypersensitivity, joint pain, and ton of other classic autoimmune stuff) but it takes a while.
>don't have a diagnosis yet
Literally HOW? I went to the dermatologist, he glanced at one of my patches and was like, "Yeah, that's Psoriasis." He took a skin biopsy anyway but mostly as a formality.
Honestly god same
Have you tried those special shampoos like T-Sal? They didn't work for me but lots of people said it was effective for them.
I don't have patches!!! I have all the rest apparently it's common ish.
It's either that or another autoimmune stuff dunno which is the best to have lool
I have a special shampoo and I wish it worked better like
My skin is so sensitive I never untied my hair cuz the contact of hair against skin is painful
>don't have patches
Oh, wild. Is it not obvious on your nails? I think psoriasis also manifests pretty obviously on nailbeds in many cases.
It might be possible that you just have arthritis too.
Sorry to hear that hair against skin sucks for you 🙁 I hope you get it properly diagnosed and treated soon.
It's obvious yeah but like I have my nails fully pitted but all doctors have barely given a look.
Only one has taken me seriously and has sent me to rheumatologist. Which I don't know when it will be but hopefully that'll be the end of it.
Thx for the support I'm kinda manic due to all of this rn I cut like super long hair to super short lol
>all doctors have barely given a look
That's when you need to go full Karen on them. No kidding, I probably annoy my doctors a lot whenever I see them because I pepper them with questions about everything.
I hope the rheumatologist can shed some better light on your condition. Good luck!
I really struggle especially since my morale is so low since I got sick yknow
I mean I have asked for tests and stuff at first I thought MS (which it obviously wasn't when skin involvement became major) and I got an MRI it's just ugh been one year
I'm so glad and also sad I cut it.
Also thx! I'm trying to stay positive and I've been learning piano to keep my fingers active so I don't lose more function than I should...
same i shaved my thighs just as a test but i will probably do the rest of my body later
Same I cut it like 5 days ago and it was to the bottom of my breasts
I put it in a ziploc bag
Why did you keep it lol
Lol
Eh actually the itching isn't the worst part it's the joint pain leaving me handicapped BUT I'm so glad the itching will if not gone alleviated and the fact it will take me minutes to shampoo if I need to instead of recovering for hours afterwards omg
fair enough well i hope the relief is nice. i love my hair more than life itself i could never
I was crying in the bath again due to having to shampoo with the itch being extreme and while shampooing i just had a meltdown lol
GONE
>Why did you keep it lol
Cause my mom pesters me about donating it afterwards but I didn't really care
Oh lol
I basically look like this rn
That looks really nice, I just ended up with a bob lol but I'm going to the salon to get it retouched like picrel
Oh yeah I know bobs and stuff don't really fit me I really only look good with past the shoulders or very short
I am surprised my panic crisis at 2am didn't lead to a hair catastrophe lol
Good for you or sorry that happened!
I legitimately look way better with short hair lmao